Rare Disease UK, created by the Genetic Alliance, is the national campaign for people with rare diseases and all who support them. Genetic Alliance UK is an alliance of over 200 patient organisations who support those affected by all types of genetic conditions. Providing a united voice for the rare disease community by capturing the experiences of patients and families. Please show your support on … Continue reading #RareDiseaseDay – 28 February 2018
When I first heard of the “couchsurfing” concept, I instantly dismissed it. To me, it sounded like no more than one poor backpacker saying to another poor backpacker “you can sleep on my sofa/floor – if you’ll do the same for me one day”. And I’m a bit long in the tooth to be kipping on floors. I was so wrong though. Making dinner with … Continue reading Couchsurfing. And why it’s for you.
Or. “Effortless Travel: When the world comes to you”. Even after 30 years of traveling, this event, which happened in Moscow in 2013, is one of the most amazing travel experiences of my life: Towards the end of my 2013 “round the world by train” trip I found myself in Moscow. I was already aware then that something “wasn’t quite right”, and that I should … Continue reading Moscow. October 2013.
Due to the progression of my own ataxia, Winter Wonderwheels was probably my last fundraising “walk” (but most definitely NOT my last ataxia fundraising/awareness-raising event). And there’s nothing better than “Going Out with a Bang”. The team. With team captain, Gold Medal winning Paralympian Susie Rodgers MBE. It was such an amazing day, being surrounded by some truly inspiring people (and a few celebrities among … Continue reading Winter Wonderwheels 2017. What a day!
To mark the UN’s #InternationalMountainDay, here is my favourite photograph – taken in 2012, just a year before #ataxia struck. The photograph is of myself sitting on top of a mountain on Mallorca, on the famed GR221 route (near Puig de Massanella). I also love this photograph because it shows just how quickly, and without warning, ataxia strikes: 2012, sitting on top of a mountain … Continue reading International Mountain Day 2017.
From now until midday on 5th December, donations to Ataxia UK will be DOUBLED when you donate via this link: >> Double Your Donation << Continue reading The Big Give Christmas Challenge 2017
If I ever park my kilted backside in the one place for long enough to hang a Christmas Stocking, then I hope to find this book inside it on Christmas Day. This book will change your life – for the better. You don’t need to be disabled, or know anyone who is, to really enjoy this book. It’s an inspirational read for everyone. As Alan … Continue reading The Little Big Things. Henry Fraser.